Appointments

Since we found out about Dylan's diagnosis, I feel like my life has been spent taking him to appointments, scheduling appointments, and following up on appointments.  And I'm pretty sure it will only get worse before it gets better!  Thank God for great insurance (and for the fact that our deductible is already paid for this year!!)

One of the big ones that is coming up is with a Pediatric Neurologist. The appointment is next Tuesday, and I'm honestly scared to death.  Up to this point, we have had a lot of doctors and nurses tell us their opinion from the limited information that they have.  Most of the time it seems like they are running a quick google search on Microcephaly before they come into the room and tell us what to expect.  While this can be frustrating and leaves us with a lot of unanswered questions, it also allows us to remain optimistic.  I can choose to believe that some of the scary things we hear about, like seizures, won't actually become a reality for Dylan.  The Neurologist, however, will know enough to look at Dylan's MRI and give us a much better understanding of what we can expect for his future. I know that the more information we have about Dylan, the better off we will be to help him overcome the challenges that he is faced with.  But I'm just so scared that we will find out something new, and have to go through the process of acceptance all over again.  Our pediatrician has also been concerned that since Dylan was born without a fontanelle (soft spot), he may have Craniosynostosis (where the plates in his head have fused together prematurely).  If this is the case, Dylan would have a surgery to separate the fused bones.  This is a relatively routine surgery and, from what I've heard, recovery isn't all too horrible, but I just can't imagine the stress of sending my baby boy into surgery to crack his skull!  Hopefully next Tuesday's appointment will answer some of these questions.  Please pray with us that we receive good news, not bad, and that we gain a better understanding of areas that we can help Dylan.  And pray that I'm not a nervous wreck between now and then!